Your Idea
Research Planning
Project Planning
Impact
It is expected that there will be early engagement with relevant patient/user groups across all aspects of the project. This engagement should continue throughout the project. It is important that application and project details should be understandable not only to the patient/user groups but also to the general public and all stakeholders.
Public Involvement Support for i4i Projects
- Ensure that there is a public involvement representative in the research team (co-applicant)
- Ensure that public involvement is used pre-award to identify research priorities
- Ensure that there is public involvement in all aspects of product and clinical development and dissemination
- Ensure other relevant stakeholders (eg researchers, practitioners, community organisations) are involved in the development of the technology
- Ensure training is available to public contributors when required
- Ensure the public are involved in deciding what the assessment of impact should focus on, the approach to take, what information should be collected to help assess the impact
Public Representative Co-applicants
Members of the public get involved in research for a variety of personal and social reasons. It may be to have a voice or be able to influence the processes that affect lives. They can make sure that their communities are represented in research.
For these reasons, it is advisable to consider having a public involvement representative as a co-applicant in the team. In this role, they can be an interface between the research team, steering groups, and the public involvement advisory group. This ensures that the patient voice and the views of the public involvement advisory group are heard and integrated into the project planning.
The role and the reason for being part of the research team, of the public involvement representative co-applicant, should be clearly described.
Public Involvement Lead/ Facilitator
The role of the Public Involvement Lead is to support the public involvement groups within the project and should be included in the team. This is separate to the public involvement group representative (co-applicant) in the research team. The Public Involvement Lead should have appropriate skills and experience and be involved in all aspects of the research project.
The Public Involvement Lead may be involved in the following activities:
- Working with public involvement groups to develop plans and the strategy throughout the project
- Act as a point of contact for public involvement group members
- Recruiting and training of new public involvement members
- Planning meetings
- Assist with report writing, creation of documents and dissemination of results
- Ensure good communication between public involvement groups and researchers
Public |Involvement Support/Input Through the Project
Pre-award
- Early-stage input
- Defining research question and aims
- Joining research team/public involvement group/stakeholders to discuss
- Ethical implications/participant burden
- Research design
- Dissemination
- Impact
- Reviewing the application
- Writing the plain English summary
- Helping to highlight research priorities
Development Stage
- Support design
- Packaging
- Interacting with manufacturer
- Identifying needs and removing potential barriers
Clinical Evaluation
- Input into ethics and patient/study documentation
- Development of protocols
- Clinical trial design and outcomes
- Writing of patient-centered information sheets
- Regulatory support
Adoption and Commercialisation
- Assist in developing a clinical implementation strategy
- Understanding clinical pathway
- End-user/customer/stakeholder input
- Active dissemination of outcomes (social media, presentations, website input)